Garvan Institute And E-nome Enter Strategic Alliance To Enhance Medical Research Data Management Through Blockchain Tech

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The Garvan Institute of Medical Research (Sydney, Australia) has signed a memorandum of understanding with E-Nome Pty Ltd, an Australian technology startup driving the application of Blockchain technology to the secure storage of health records.

Under the terms of the agreement, Garvan and E-Nome will collaborate to explore the application of E-Nome’s Blockchain-enabled health record management platform to medical research. Together, Garvan and E-Nome will assess the potential of the E-Nome platform for the secure storage of genomic information, and for the collection and management of research data across Garvan’s six research Divisions.

E-Nome has developed a Blockchain-based medical record management platform that empowers individuals to take control of their own health records, on a smartphone, with watertight security and privacy. Through the E-Nome platform, medical records can be automatically retrieved, anonymised, and stored directly from the Health Service Provider Electronic Medical Record (EMR) system without risking personal identification at any stage. The individual has the choice of consenting to all or some of the records being available for medical research studies, whilst still preserving their anonymity from researchers and research institutions.

John Mattick AO, Executive Director of Garvan says:

“Garvan is excited to be working with E-Nome. We see huge potential for E-Nome’s Blockchain-enabled platform to radically enhance the security of genomic and other health information, to the benefit of both individuals and medical research.

“We are entering the transformative era of precision health – in which an individual’s genomic information, in combination with other health records, will directly inform their lifestyle choices, their genetic risks of developing disease and the best ways to reduce those risks. In this new environment, the security and privacy of an individual’s health information must remain paramount.

“We are also ushering in an entirely new ‘data ecology’ – in which new insights into health will be derived from the comparison of thousands, and ultimately millions of individual genome sequences in concert with other health information. It is our responsibility, therefore, to actively pursue next-generation approaches that can safeguard the unique genomic information of individuals while making it available for research to improve healthcare – and to work closely with companies such as E-Nome, who share our vision.”

Nicholas Curtis AM (Founder and Chair, E-Nome) says, “Our alliance with Garvan is key to our core purpose: empowering consumers to take control of their own medical history and enabling them to share their anonymised data as they see fit, with the utmost privacy and security.

“Genomic information, which provides high-resolution data about so many aspects of an individual’s health, is an area in which data security and privacy is a particularly pressing concern. For this reason, E-Nome is proud to be partnering with Garvan, who are leaders in genome sequencing and analysis, and in the clinical application of genomic information, particularly in rare and genetic disorders, in immune disorders and in cancer.

“By bringing our Blockchain-enabled platform to bear on genomic information and other health information, we seek to position the individual at the forefront of the development of precision medicine in Australia, and to help place Australia at the forefront of global medical research.”

About Richard Kastelein

Founder of industry publication Blockchain News, partner at ICO services collective CryptoAsset Design Group (helped raise over $200m+), director of education company Blockchain Partners (Oracle Partner) and ICO event organiser at leading industry event  CryptoFinancing (first ICO event in Europe) - Richard Kastelein is an award-winning publisher, innovation executive and entrepreneur. He sits on the advisory boards of half a dozen Blockchain startups and has written over 1200 articles on Blockchain technology and startups at Blockchain News and has also published pioneering articles on ICOs in Harvard Business Review and Venturebeat.
 
Kastelein has spoken (keynotes & panels) on Blockchain technology in Amsterdam, Antwerp, Barcelona, Beijing, Brussels, Bucharest, Dubai, Eindhoven, Gdansk, Groningen, the Hague, Helsinki, London, Manchester, Minsk, Nairobi, Nanchang, San Mateo, Shanghai,Tel Aviv and Venice. His network is global and extensive.
 
He is a Canadian (Dutch/Irish/English/Métis) whose writing career has ranged from the Canadian Native Press (Arctic) to the Caribbean & Europe. He's written occasionally for Harvard Business Review, Wired, Venturebeat, The Guardian and Virgin.com and his work and ideas have been translated into Dutch, Greek, Polish, German and French.
 
A journalist by trade, an entrepreneur and adventurer at heart, Kastelein's professional career has ranged from political publishing to TV technology, boatbuilding to judging startups, skippering yachts to marketing and more as he's travelled for nearly 30 years as a Canadian expatriate living around the world.
 
In his 20s, he sailed around the world on small yachts and wrote a series of travel articles called, "The Hitchhiker's Guide to the Seas' travelling by hitching rides on yachts (1989) in major travel and yachting publications. He currently lives in Groningen, Netherlands where he's raising three teenage daughters with his wife and sailing partner, Wieke Beenen.

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